What We Do
Teenage Cancer Trust Unit in the United Kingdom. Cardiff: University Hospital of Wales
Teen & Young Adult Units
• Fund analysis and documentation of US Best Practices (Blueprint for Care) in the treatment of teens and young adults with cancer.
• Work with hospitals to provide strategic advice to establish units that are run by staff who are trained in how best to address the unique needs of these patients.
• Provide ongoing guidance to assure units are maintaining the TCA Centers of Excellence standards.
• Develop, circulate, and administer ongoing training for doctors and other personnel that work with teens and young adults with cancer to help them deal with their unique needs.
• Develop vehicles and opportunities that encourage clinicians and other professionals that work with teens and young adults todiscuss findings raise questions and share successes. Examples might include the creation of message boards, forums, social media, and web conferences.
Education
• Develop materials and programming to help students, teachers, administrators, educators and employers understand how they can best support teens and young adults with cancer when they return to school and work.
• Develop and maintain comprehensive inventory and analysis of research, guidelines and best practices in the care of teens and young adults with cancer.
Support
• Develop materials and programming that serve teens and young adults with cancer and their families. Examples might include expanding programming and collaborate with existing organizations currently providingsuch services, developing new programming with hospitals, etc.
• Develop and maintain a comprehensive inventory and analysis of psychosocial support programs focused on teens and young adults with cancer.
Awareness
• Set up booths at community cancer events and disseminate material.
• Exhibit at conferences and expos that are focused on teen and young adult cancer and health awareness.
• Outreach and awareness to the national media, social media, and publishing in journals such as the New England Journal of Medicine, Journal of Clinical Oncology, Journal of Adolescent and Young Adult Oncology, etc.
• Establish relationships with recognized, credible, influencers ex. National Cancer Institute, American Society of Clinical Oncology, the Institute of Medicine and others.
• Participate in extending the international Teenage Cancer Trust Teen and Young Adult Cancer Conference that health professionals to learn about recent developments in cancer - say this more clearly.
• National grassroots awareness efforts.